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Lea Marie Farone Foundation

Lea Marie Farone Foundation

Helping children and young adults with chronic illness do the things they dream of doing.

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Meet our Grant Recipients

  • Laikleigh

    Laikleigh

    Laikleigh’s journey with Cystic Fibrosis began even before her birth when her condition was detected during prenatal screening at 37 weeks. Immediately after her arrival, she was whisked away to the NICU, beginning her battle against CF from the very start. Following her birth, Laikleigh spent 55 days in a hospital in Atlanta, where she…

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  • Granger

    Granger

    Granger Y. a super 2 year old with PCD and Bronchiectasis all the way from Minnesota. Granger was born at 36 weeks and spent 2 weeks in the special care unit. At 9 months he had tubes placed for repeated ear infections. At 17 months he was seen by gastroenterology for vomiting after eating. And…

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  • Mikhael

    Mikhael

    After hours of searching for a mobile vest, Mikhael’s adoptive mother stumbled upon LMFF’s #flymetothemoon grant program…She knew right away it was the support her family so desperately needed and applied for the program that very night. Being a kid with a chronic illness is hard enough, but imagine being stuck in one spot for…

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  • Brooke

    Brooke

    LMFF assisted Brooke in paying for her CPT vest that will give her more flexibility and a higher quality of life in getting her daily medical treatments completed! Brooke was diagnosed with Cystic Fibrosis at birth and has had five sinus surgeries to remove nasal polyps. Brooke is living out her dream as a registered…

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  • Raelynn

    Raelynn

    7 year-old Raelynn C., lives with Cystic Fibrosis just outside of Louisiana, USA. She received a brand new Afflovest by Tactile Medical in July 2022. 

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  • Brynn

    Brynn

    The Lea Marie Faraone Foundation surprised 10-year-old cystic fibrosis patient and Fox Hunter, Brynn Miller with an AffloVest on Saturday, January 23, 2021.

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  • Joey

    Joey

    The Lea Marie Faraone Foundation surprised 10-year-old cystic fibrosis patient, Joey Miller with an AffloVest for Christmas.

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  • Makayla

    Makayla

    Makayla is a sweet and vibrant 5-year-old living with cystic fibrosis. She has spent most of her life in the State of Maine foster care system and was adopted in January 2019 by her new loving mother, Amanda.

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  • Angelina

    Angelina

    15-year-old cystic fibrosis patient, Angelina Prince, received the Volara System to improve her quality of life. Created by Hillroom Medical Corp, this Oscillation & Lung Expansion Therapy (OLE) is the first of its kind. It combines 3 respiratory therapies to help patients breathe easier. Now, Angelina will receive the benefits of OLE therapy in the…

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A new addition to our #WhyWaitForWings map has bee A new addition to our #WhyWaitForWings map has been spotted! 🦋

LMFF supporter Rebecca's mom, Sarah, created these beautiful wings in Timonium, MD, and we just had to share them with all of you 💜

Every pair of wings, whether handmade, spotted, or sent from near or far, is another beautiful reminder of Lea and the legacy that continues to travel with us.

And just a reminder: our wings campaign isn't limited to summer! You can send us your wings any time of year! 📸 DM us or email a photo to LeaMarieFaraoneFoundation@gmail.com with your name and where you found (or made!) them.

Thank you, Sarah, for sharing this special piece of art you’ve created! 💜

Where will Lea's wings show up next? 🦋
Can't make it to the Chalk Walk in person? You can Can't make it to the Chalk Walk in person? You can still be part of it 🦋💜

When you donate $10 online, we'll write your name on a beautiful butterfly to be displayed at the Chalk Walk on October 17th. Every name represents a voice of support, a symbol of hope, and a step toward greater awareness of CF and chronic illness.

Your butterfly will help tell the world that Lea's legacy lives on 💫

📍 Donate $10 online, include your name, and let your support take flight: https://www.paypal.com/donate/?hosted_button_id=RVH6M8JTWA5DC

Whether your butterfly is drawn by your own hand or ours, you're part of this community and we can’t thank you enough for the support 💜
Each year, we follow up with our Fly Me To The Moo Each year, we follow up with our Fly Me To The Moon Grant Recipients to hear how they are doing and follow along on their journey to living like they are illness-free 💜

Cooper's mom, Kellyn, shared just how much of a difference his AflloVest has made in their day-to-day life:

"We are still absolutely LOVING our AffloVest. It has made day-to-day life so much more enjoyable for Cooper."

Because his vest is portable, Cooper can bring it with him to MawMaw's every day, which means more sleep in the mornings and no more waking up 45 minutes early just to complete therapy. And these days, he doesn't even need reminding. If he coughs just once, he'll say, "I need to do my vest", and he's learned to operate it all on his own! How incredible is that?!

There's more amazing news, too. Cooper recently had his first sweat chloride test since diagnosis, and thanks to his modulator, his levels are now just 1–2 points away from falling within range of someone without CF 🎉 Needless to say, not only are Cooper’s parents amazed, we all are too!!!

Since receiving his grant, Cooper has traveled to the Bahamas, Disney, Turks and Caicos, Florida, and Tennessee. He’s enjoying every trip without ever having to compromise his treatments.

This is exactly what "Fly Me To The Moon" is all about: giving kids like Cooper the freedom to live fully, wherever life takes them 🚀🦋

Thank you, Kellyn, for sharing this update and thank YOU for making moments like this possible 💜
Wondering what a day at the Chalk Walk looks like? Wondering what a day at the Chalk Walk looks like? Here's what to expect on October 17 🦋💜

🎨 Butterfly Chalk Art Zone: grab some chalk and draw a butterfly of your own, or write a message of hope on the pavement

 💜 Face Painting & Children’s Activities: perfect for the little ones! Children’s activities will be happening all day long, with face painting between 12:30pm & 3pm.

 📣 Meet the LMFF Team: learn more about our mission and the programs your support powers

 👨‍👩‍👧‍👦 Family-Friendly Fun: all ages, all welcome! There will be sidewalk chalk, bubbles & our brand new butterfly catcher!

Whether you're a first-timer or you've been with us since year one, there's a place for you on the pavement this year. Help us draw as many butterflies as we can 🦋

📅 October 17 | 10AM–4PM
 📍 Hunt Valley Towne Centre, Center of Main Loop
 🌧️ Rain Date: October 18

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The Lea Marie Faraone Foundation is a 501c(3) providing life changing opportunities to children and young adults fighting chronic illness so they may live as if they are illness-free.


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P.O. Box 20396, Towson, MD, 21284, US
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