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Lea Marie Farone Foundation

Lea Marie Farone Foundation

Helping children and young adults with chronic illness do the things they dream of doing.

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Meet our Grant Recipients

  • Granger

    Granger

    Granger Y. a super 2 year old with PCD and Bronchiectasis all the way from Minnesota. Granger was born at 36 weeks and spent 2 weeks in the special care unit. At 9 months he had tubes placed for repeated ear infections. At 17 months he was seen by gastroenterology for vomiting after eating. And…

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  • Mikhael

    Mikhael

    After hours of searching for a mobile vest, Mikhael’s adoptive mother stumbled upon LMFF’s #flymetothemoon grant program…She knew right away it was the support her family so desperately needed and applied for the program that very night. Being a kid with a chronic illness is hard enough, but imagine being stuck in one spot for…

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  • Brooke

    Brooke

    LMFF assisted Brooke in paying for her CPT vest that will give her more flexibility and a higher quality of life in getting her daily medical treatments completed! Brooke was diagnosed with Cystic Fibrosis at birth and has had five sinus surgeries to remove nasal polyps. Brooke is living out her dream as a registered…

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  • Raelynn

    Raelynn

    7 year-old Raelynn C., lives with Cystic Fibrosis just outside of Louisiana, USA. She received a brand new Afflovest by Tactile Medical in July 2022. 

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  • Brynn

    Brynn

    The Lea Marie Faraone Foundation surprised 10-year-old cystic fibrosis patient and Fox Hunter, Brynn Miller with an AffloVest on Saturday, January 23, 2021.

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  • Joey

    Joey

    The Lea Marie Faraone Foundation surprised 10-year-old cystic fibrosis patient, Joey Miller with an AffloVest for Christmas.

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  • Makayla

    Makayla

    Makayla is a sweet and vibrant 5-year-old living with cystic fibrosis. She has spent most of her life in the State of Maine foster care system and was adopted in January 2019 by her new loving mother, Amanda.

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  • Angelina

    Angelina

    15-year-old cystic fibrosis patient, Angelina Prince, received the Volara System to improve her quality of life. Created by Hillroom Medical Corp, this Oscillation & Lung Expansion Therapy (OLE) is the first of its kind. It combines 3 respiratory therapies to help patients breathe easier. Now, Angelina will receive the benefits of OLE therapy in the…

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  • Conlee

    Conlee

    6-year-old Conlee was diagnosed with CF when he was 13 days old. The Fly Me to the Moon grant helped provide him with an AffloVest, a battery-operated High-Frequency Chest Wall Oscillation (HFCWO) therapy that let patients receive state-of-the-art airway clearance therapy on the go. The vest will make daily treatments easier for Conlee and allow…

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Sometimes, the smallest moments leave the biggest Sometimes, the smallest moments leave the biggest impact and this one is no exception 🪽 💜

Because of the generosity of our supporters, Maddox is receiving his new AffloVest, a life-changing piece of equipment that will help make his daily cystic fibrosis treatments more comfortable and give him greater freedom to simply be a kid.

Along with his new vest, Maddox also received his Fly Me To The Moon wings, a reminder that he has an entire community cheering him on every step of the way.

To everyone who has donated, sponsored an event, attended a fundraiser, or supported the Lea Marie Faraone Foundation in any way, thank you. Your generosity makes moments like this possible. To @afflovest , thank you for allowing us to continue to improve the lives of so many who are suffering from this terrible disease. We couldn’t do it without you!

Watching Maddox’s smile says it all 💜

Here’s to helping more children and young adults living with chronic illness spread their wings and live life to the fullest.
As Lea’s birthday month comes to a close, we’re tr As Lea’s birthday month comes to a close, we’re truly so overwhelmed with gratitude 🎂

This July, we celebrated what would have been Lea’s 36th birthday by doing what she did best: bringing people together, spreading kindness, and making a difference.

Together, we celebrated our newest Women in Science Scholarship recipient, welcomed Maddox and his family through our Fly Me To The Moon Grant, watched our #WhyWaitForWings map grow with wing sightings from near and far (plus there will be SO many more from you coming throughout the summer), and shared stories that continue to raise awareness for cystic fibrosis and chronic illness.

Each of these moments is a reminder that Lea’s legacy is still changing lives.

If you haven’t yet had the chance to support our $36 for 36 birthday campaign, there’s still time.

A donation of $36 (or any amount that is meaningful to you) helps us continue providing opportunities, resources, and moments of joy for children and young adults living with chronic illness. It helps families like Maddox’s. It helps students pursue their dreams. It helps ensure Lea’s light continues to shine.

Thank you for celebrating Lea with us this month and for believing in the mission that continues in her name.

Together, we’re helping more young people live boldly, dream big, and make the most of every moment.

Donate today 💜 https://www.paypal.com/donate/?hosted_button_id=RVH6M8JTWA5DC

#WhyWaitForWings #36for36
Behind every diagnosis is a family’s story. Today Behind every diagnosis is a family’s story.

Today, we’re honored to introduce you to Maddox and his incredible family.

In part 1 of their story, they share the challenges they’ve faced since Maddox’s cystic fibrosis diagnosis, the resilience they’ve found along the way, and what receiving a Fly Me To The Moon Grant means to them.

Their story is one of strength, hope, and the incredible impact that a caring community can have.

Take a few minutes to listen. We promise it’s worth it 💜

Part 2 is coming soon, where you’ll see Maddox receive his wings! 🪽

@afflovest
Another pair of wings has found its way onto our # Another pair of wings has found its way onto our #WhyWaitForWings map! 🦋

A big thank you to Courtney for sending us this beautiful set of vibrant yellow wings from Sandbridge Beach, Virginia! ☀️🌊

Every wing sighting shared with us is a reminder that Lea’s legacy continues to spread far beyond where it all began. It’s amazing to see our map grow with each photo, each story, and each person helping us keep Lea’s spirit flying high.

Heading out on an adventure this summer? Keep an eye out for wings wherever you go! They can be found in murals, artwork, nature, sculptures, and all kinds of unexpected places.

📸 If you spot a pair, send us a photo along with your name and location at LeaMarieFaraoneFoundation@gmail.com, or DM us!

Where will Lea’s wings take us next? 💜

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The Lea Marie Faraone Foundation is a 501c(3) providing life changing opportunities to children and young adults fighting chronic illness so they may live as if they are illness-free.


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