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Lea Marie Farone Foundation

Lea Marie Farone Foundation

Helping children and young adults with chronic illness do the things they dream of doing.

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For life well lived, today

We help youth with cystic fibrosis and chronic illnesses live like they’re illness-free.

Get Involved

For life well lived, today

We help youth with cystic fibrosis and chronic illnesses live like they’re illness-free.

Get Involved

A non-profit supporting children and young adults with chronic illness to pursue their dreams in the present.

Because why wait for wings to fly?

About Lea

A passionate advocate for quality of life

Lea Faraone was a nurse, public figure, and driven advocate who passed away at 28 due to cystic fibrosis. She believed no one should spend their time waiting for a cure, so we should do everything we can to improve their quality of life now.

Our Story

Help young people with chronic illness live life to the fullest

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Fly Me To The Moon Grant

Our grant provides access to the latest treatments and resources, allowing patients to experience more freedom and joy every day.

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6th Annual
Swing Fling

Join us for our 6th Annual Swing Fling on June 5 at Greystone Golf Course.

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Women in Science Scholarship

We award a scholarship to seniors at Notre Dame Preparatory School who are entering science or medical fields.

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Fly Me to the Moon

Recipient stories from the LMFF community

“I can’t even express how thankful we are. You blessed Micah and our family with the therapy pool, and the kids are so excited about their new toys. We are so thankful. You have made our week, day, and years to come.”

— The Clarks, Fly Me To the Moon Grant recipients

“The Lea Marie Faraone Foundation provided our son, Conlee, with an Afflovest in May of 2021. This amazing gift has allowed us to fit in his CF treatments on-the-go without having to leave events or cut time with family short. Conlee is not a kid who likes to hold still or stay at home, so having the ability to do treatments while being on the move has helped improve his outlook on CF as well as made his compliance impeccable. We cannot thank the LMF Foundation enough for this incredible gesture and we will continue to tell Lea’s story every chance we get!”

— The Handshys, Fly Me To the Moon Grant recipients

Our Key Sponsors

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Learn more about living with chronic illness on our blog

  • Meet our 2023 Blog Ambassador | Tyler Smith

    Meet our 2023 Blog Ambassador | Tyler Smith

    What comes to mind when we here to words, “we need to talk about transplant as an option?” To me I felt in my mind that this is the end stage of maybe not just my lungs, but of me, but it wasn’t. On June 22nd, 2018, I was given a second chance at life.…

    Read Article

  • Chronic Illness and Mental Wellness

    Chronic Illness and Mental Wellness

    Our returning Blog Ambassador, Kasey Seymour, who underwent double lung transplant surgery in 2016, shares her struggle with anxiety, depression and taking control of her mental health… Cystic Fibrosis is an invisible disease, for the most part, you can’t tell we are sick. To most people we look like everyone else, it isn’t until our…

    Read Article


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The Vision In Action

Our Mounting Impact

18+

Over 18 Fly Me to the Moon grants awarded—and counting

$225,000+

Over $225,000 worth of medical equipment and supplies donated

$120,000+

Over $120,000 raised for a cystic fibrosis cure

Fly Me to the Moon Stories

Meet a Few of our Past Recipients

  • Ray

    Ray

    Ray is a 17-year-old living with Spinal Muscular Atrophy Type 1 (SMA), a progressive neuromuscular disease that causes severe muscle weakness. Diagnosed at just five months old at Children’s Hospital of Philadelphia, Ray has faced countless medical challenges with strength, resilience, and an incredible outlook on life. Despite it all, Ray continues to thrive. He…

    Learn More

  • Cooper

    Cooper

    Cooper Pike was diagnosed with Cystic Fibrosis at just 17 days old through newborn screening.Cooper is now 2.5 years old with daily treatments, a loving supportive system and his unstoppable energy. Cooper is living each day with courage, curiosity, and heart. He loves t-ball, football, running and jumping on his trampoline. Cooper’s Mom advocated for…

    Learn More

  • Logan

    Logan

    Logan was diagnosed with CF through prenatal screening. While Logan has been relatively healthy and has been able to keep up with his treatments, being tethered to a vest that’s also very loud was isolating for him. Melissa, Logan’s mom, discovered the Lea Marie Faraone Foundation via a post and knew they needed to give…

    Learn More


View All Recipients

Why Wait for Wings?

Find support or contribute to our initiatives

Discover all the ways you can get involved with the LMFF mission.

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One of the core missions of the Lea Marie Faraone One of the core missions of the Lea Marie Faraone Foundation is to bring greater awareness to chronic illnesses like cystic fibrosis. One of the simplest ways we can do that is by sharing what life with CF can really look like. 💜

Did you know that managing cystic fibrosis is much more than taking medication?

Every person with CF has a unique treatment plan, but daily care often includes:
🫁 Airway clearance therapy to help loosen and clear mucus from the lungs.
💨 Inhaled medications to open the airways, thin mucus, and help prevent or treat lung infections.
💊 Pancreatic enzymes with every meal and snack to help the body absorb nutrients, along with specialized vitamins.
🏃‍♀️ Regular physical activity to support lung function, energy, and overall health.
🧬 CFTR modulators for those with eligible gene mutations, helping target the underlying cause of CF.

Living with cystic fibrosis means dedicating hours each day to treatments that most people never have to think about. By learning more about CF, we can better understand the resilience of those living with it and the importance of continued research, care, and support.

Awareness starts with understanding. 💜
This July, we’re celebrating what would have been This July, we’re celebrating what would have been Lea’s 36th birthday. A month dedicated to honoring her life, her legacy, and the incredible impact she continues to have 🎂💜

To celebrate, we’re inviting our community to take part in our $36 for 36 campaign by making a $36 donation in Lea’s memory.

Your gift helps us continue the work that meant so much to Lea, providing Fly Me To The Moon Grants, Women in Science Scholarships, Advocacy & Awareness, and support for children, young adults, and families navigating chronic illness.

Every dollar helps carry Lea’s legacy forward. Every act of generosity helps someone feel seen, supported, and hopeful 🪽🦋

Donate here 🔗 https://www.paypal.com/donate/?hosted_button_id=RVH6M8JTWA5DC
The first wings have been sighted! 🪽🦋 #WhyWaitFor The first wings have been sighted! 🪽🦋

#WhyWaitForWings is officially underway, and we’re kicking things off with a beautiful pair of wings spotted all the way in the Bahamas! 🌴☀️

A huge thank you to Caroline Schinder for sharing this special sighting with us. Every pair of wings added to our map is a reminder that Lea’s legacy continues to reach people near and far.

Traveling this summer? Keep your eyes open! Wings can be found in murals, artwork, nature, sculptures, signs, and so many unexpected places.

📸 If you spot a pair of wings, send us a photo along with your name and location at LeaMarieFaraoneFoundation@gmail.com, or tag @leamariefaraonefoundation and use #WhyWaitForWings.

Let’s see how far Lea’s wings can travel this summer 💜🦋
We know many of you are hitting the road (or hoppi We know many of you are hitting the road (or hopping in a plane) this summer, so we have a little ask of you… help us fill our #WhyWaitForWings map again this summer! 🦋🪽

One of our favourite traditions is back!

All summer long, we’re collecting photos of wings and butterflies spotted near and far to celebrate Lea and the beautiful ways her legacy continues to touch lives.

📸 Here’s how to participate:

🪽 Snap a photo of any wings you come across. Murals, artwork, nature, signs, decorations… anything that reminds you of Lea.

📧 Email your photo to LeaMarieFaraoneFoundation@gmail.com and include your name and location.

📱 Sharing on social? Tag @leamariefaraonefoundation and use #WhyWaitForWings so we can see your post!

Throughout the summer, we’ll share your sightings and add them to our map, showing just how far Lea’s wings and legacy continue to fly 💜

Let’s fill the world with beauty, joy, and reminders that Lea’s light is still flying high with us.

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The Lea Marie Faraone Foundation is a 501c(3) providing life changing opportunities to children and young adults fighting chronic illness so they may live as if they are illness-free.


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