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Lea Marie Farone Foundation

Lea Marie Farone Foundation

Helping children and young adults with chronic illness do the things they dream of doing.

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  • Meet our 2023 Blog Ambassador | Tyler Smith

    Meet our 2023 Blog Ambassador | Tyler Smith

    What comes to mind when we here to words, “we need to talk about transplant as an option?” To me I felt in my mind that this is the end stage of maybe not just my lungs, but of me, but it wasn’t. On June 22nd, 2018, I was given a second chance at life.…

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  • Chronic Illness and Mental Wellness

    Chronic Illness and Mental Wellness

    Our returning Blog Ambassador, Kasey Seymour, who underwent double lung transplant surgery in 2016, shares her struggle with anxiety, depression and taking control of her mental health… Cystic Fibrosis is an invisible disease, for the most part, you can’t tell we are sick. To most people we look like everyone else, it isn’t until our…

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  • Meet our 2022 Blog Ambassador | Kasey Seymour

    Meet our 2022 Blog Ambassador | Kasey Seymour

    Our 2021 Blog Ambassador Kasey Seymour is back for another year! As a Double Lung Transplant survivor, Kasey shared her experiences living overseas with Cystic Fibrosis and her double lung transplant journey… My name is Kasey Seymour and I am so excited to be a CF- transplant ambassador for the Lea Marie Faraone Foundation! I…

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Can't make it to the Chalk Walk in person? You can Can't make it to the Chalk Walk in person? You can still be part of it 🦋💜

When you donate $10 online, we'll write your name on a beautiful butterfly to be displayed at the Chalk Walk on October 17th. Every name represents a voice of support, a symbol of hope, and a step toward greater awareness of CF and chronic illness.

Your butterfly will help tell the world that Lea's legacy lives on 💫

📍 Donate $10 online, include your name, and let your support take flight: https://www.paypal.com/donate/?hosted_button_id=RVH6M8JTWA5DC

Whether your butterfly is drawn by your own hand or ours, you're part of this community and we can’t thank you enough for the support 💜
Each year, we follow up with our Fly Me To The Moo Each year, we follow up with our Fly Me To The Moon Grant Recipients to hear how they are doing and follow along on their journey to living like they are illness-free 💜

Cooper's mom, Kellyn, shared just how much of a difference his AflloVest has made in their day-to-day life:

"We are still absolutely LOVING our AffloVest. It has made day-to-day life so much more enjoyable for Cooper."

Because his vest is portable, Cooper can bring it with him to MawMaw's every day, which means more sleep in the mornings and no more waking up 45 minutes early just to complete therapy. And these days, he doesn't even need reminding. If he coughs just once, he'll say, "I need to do my vest", and he's learned to operate it all on his own! How incredible is that?!

There's more amazing news, too. Cooper recently had his first sweat chloride test since diagnosis, and thanks to his modulator, his levels are now just 1–2 points away from falling within range of someone without CF 🎉 Needless to say, not only are Cooper’s parents amazed, we all are too!!!

Since receiving his grant, Cooper has traveled to the Bahamas, Disney, Turks and Caicos, Florida, and Tennessee. He’s enjoying every trip without ever having to compromise his treatments.

This is exactly what "Fly Me To The Moon" is all about: giving kids like Cooper the freedom to live fully, wherever life takes them 🚀🦋

Thank you, Kellyn, for sharing this update and thank YOU for making moments like this possible 💜
Wondering what a day at the Chalk Walk looks like? Wondering what a day at the Chalk Walk looks like? Here's what to expect on October 17 🦋💜

🎨 Butterfly Chalk Art Zone: grab some chalk and draw a butterfly of your own, or write a message of hope on the pavement

 💜 Face Painting & Children’s Activities: perfect for the little ones! Children’s activities will be happening all day long, with face painting between 12:30pm & 3pm.

 📣 Meet the LMFF Team: learn more about our mission and the programs your support powers

 👨‍👩‍👧‍👦 Family-Friendly Fun: all ages, all welcome! There will be sidewalk chalk, bubbles & our brand new butterfly catcher!

Whether you're a first-timer or you've been with us since year one, there's a place for you on the pavement this year. Help us draw as many butterflies as we can 🦋

📅 October 17 | 10AM–4PM
 📍 Hunt Valley Towne Centre, Center of Main Loop
 🌧️ Rain Date: October 18
Did you know cystic fibrosis doesn't just affect t Did you know cystic fibrosis doesn't just affect the lungs? 💜

CF causes the body to produce unusually thick, sticky mucus and that mucus can impact multiple organs, not just one:

• Lungs: Mucus clogs the airways and traps bacteria, leading to frequent infections, inflammation, and over time, respiratory complications. This is a big reason why avoiding germs is such a constant, top-of-mind concern for people with CF.

• Pancreas: Mucus buildup can block the release of digestive enzymes the body needs to absorb food and nutrients, which can lead to malnutrition and slowed growth, especially in kids.

• Liver: Thick mucus can block the bile duct, which over time can contribute to liver disease.

Cystic fibrosis touches nearly every system in the body and understanding that is a big part of understanding what people with CF manage every single day.

Awareness starts with understanding and that’s a big reason our team here at LMFF are dedicated to bringing more awareness to CF and CF-related illnesses 💜

Source: Cystic Fibrosis Foundation (cff.org)

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The Lea Marie Faraone Foundation is a 501c(3) providing life changing opportunities to children and young adults fighting chronic illness so they may live as if they are illness-free.


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