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Lea Marie Farone Foundation

Lea Marie Farone Foundation

Helping children and young adults with chronic illness do the things they dream of doing.

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  • Meet our 2023 Blog Ambassador | Tyler Smith

    Meet our 2023 Blog Ambassador | Tyler Smith

    What comes to mind when we here to words, “we need to talk about transplant as an option?” To me I felt in my mind that this is the end stage of maybe not just my lungs, but of me, but it wasn’t. On June 22nd, 2018, I was given a second chance at life.…

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  • Chronic Illness and Mental Wellness

    Chronic Illness and Mental Wellness

    Our returning Blog Ambassador, Kasey Seymour, who underwent double lung transplant surgery in 2016, shares her struggle with anxiety, depression and taking control of her mental health… Cystic Fibrosis is an invisible disease, for the most part, you can’t tell we are sick. To most people we look like everyone else, it isn’t until our…

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  • Meet our 2022 Blog Ambassador | Kasey Seymour

    Meet our 2022 Blog Ambassador | Kasey Seymour

    Our 2021 Blog Ambassador Kasey Seymour is back for another year! As a Double Lung Transplant survivor, Kasey shared her experiences living overseas with Cystic Fibrosis and her double lung transplant journey… My name is Kasey Seymour and I am so excited to be a CF- transplant ambassador for the Lea Marie Faraone Foundation! I…

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Another beautiful pair of wings has found its plac Another beautiful pair of wings has found its place on our #WhyWaitForWings map! 🦋

These wings were spotted in Paris, France by Lea’s uncle, Dr. Richard Leupold, while on vacation 🇫🇷 It’s incredible to see Lea’s legacy reaching across the globe, with each new wing sighting serving as a reminder of the love, hope, and kindness she continues to inspire.

Thank you, Richard, for sharing this special find with us. 💜

Have you spotted a pair of wings this summer? We’d love to add them to our map!

📸 Send us your photo by email at LeaMarieFaraoneFoundation@gmail.com or simply send it to us in a DM. Don’t forget to include your name and where you found them!

Let’s keep filling the map and celebrating Lea’s beautiful legacy, one pair of wings at a time 🦋
Have you spotted any wings this summer? 🦋 Our #Wh Have you spotted any wings this summer? 🦋

Our #WhyWaitForWings map is growing, and we’d love to add your wing sightings!

Whether you’re traveling across the country or exploring your own hometown, keep an eye out for wings. Murals, sculptures, artwork, nature, and unexpected places can all remind us of Lea and the legacy she continues to leave behind.

📸 When you find a pair, send us:
- A photo
- The location
- Your name (if you’d like us to include it)

You can:
📧 Email your photo to LeaMarieFaraoneFoundation@gmail.com
OR
💌 Send it to us in a DM right here on Instagram or Facebook!

We’ll feature your photo and add it to our growing #WhyWaitForWings map.

Let’s see how many places Lea’s wings can reach this summer. We can’t wait to see where you find them next! 🦋💜
One of the greatest gifts Lea left behind was her One of the greatest gifts Lea left behind was her perspective.

Even while living with cystic fibrosis, she chose to focus on what she could do, embracing life with gratitude, courage, and joy.

“The happiest people don’t have the best of everything, they just make the best of everything.”

Those words continue to guide the work we do and remind us to make the most of every moment.

💜
Sometimes, the smallest moments leave the biggest Sometimes, the smallest moments leave the biggest impact and this one is no exception 🪽 💜

Because of the generosity of our supporters, Maddox is receiving his new AffloVest, a life-changing piece of equipment that will help make his daily cystic fibrosis treatments more comfortable and give him greater freedom to simply be a kid.

Along with his new vest, Maddox also received his Fly Me To The Moon wings, a reminder that he has an entire community cheering him on every step of the way.

To everyone who has donated, sponsored an event, attended a fundraiser, or supported the Lea Marie Faraone Foundation in any way, thank you. Your generosity makes moments like this possible. To @afflovest , thank you for allowing us to continue to improve the lives of so many who are suffering from this terrible disease. We couldn’t do it without you!

Watching Maddox’s smile says it all 💜

Here’s to helping more children and young adults living with chronic illness spread their wings and live life to the fullest.

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The Lea Marie Faraone Foundation is a 501c(3) providing life changing opportunities to children and young adults fighting chronic illness so they may live as if they are illness-free.


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