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Lea Marie Farone Foundation

Lea Marie Farone Foundation

Helping children and young adults with chronic illness do the things they dream of doing.

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  • Meet our 2023 Blog Ambassador | Tyler Smith

    Meet our 2023 Blog Ambassador | Tyler Smith

    What comes to mind when we here to words, “we need to talk about transplant as an option?” To me I felt in my mind that this is the end stage of maybe not just my lungs, but of me, but it wasn’t. On June 22nd, 2018, I was given a second chance at life.…

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  • Chronic Illness and Mental Wellness

    Chronic Illness and Mental Wellness

    Our returning Blog Ambassador, Kasey Seymour, who underwent double lung transplant surgery in 2016, shares her struggle with anxiety, depression and taking control of her mental health… Cystic Fibrosis is an invisible disease, for the most part, you can’t tell we are sick. To most people we look like everyone else, it isn’t until our…

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  • Meet our 2022 Blog Ambassador | Kasey Seymour

    Meet our 2022 Blog Ambassador | Kasey Seymour

    Our 2021 Blog Ambassador Kasey Seymour is back for another year! As a Double Lung Transplant survivor, Kasey shared her experiences living overseas with Cystic Fibrosis and her double lung transplant journey… My name is Kasey Seymour and I am so excited to be a CF- transplant ambassador for the Lea Marie Faraone Foundation! I…

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Lea had a way of finding something meaningful in e Lea had a way of finding something meaningful in every experience, even the difficult ones 💜

“I am so thankful for all the good and bad experiences I’ve had this year because it’s taught me more about myself than I could have ever imagined.” – Lea

Her words are a reminder that growth doesn’t always come from the moments we would choose for ourselves. Sometimes it’s the challenges, the unexpected turns, and everything in between that teach us the most about who we are.

Through it all, Lea continued to learn, grow, and embrace the life in front of her.

A little reminder from Lea to be grateful for the whole journey, not just the easy parts 🦋
There’s a reason we call it Lea’s Butterfly Bush 🦋 There’s a reason we call it Lea’s Butterfly Bush 🦋💜

Every summer, this bush comes to life with butterflies, and there’s something so special about watching them gather, flutter, and stay awhile.

Butterflies have become such a meaningful reminder of Lea to our family, and moments like this have a way of making her feel just a little bit closer 🦋

#WhyWaitForWings
🪽 Another special wing sighting for our #WhyWaitFo 🪽 Another special wing sighting for our #WhyWaitForWings map! 🦋

Lea’s second cousin Liam and his mom, Casie, spotted these wings in Harrisburg, Pennsylvania and made sure to send them our way 💜

We love seeing Lea’s family join in and help us continue filling the map. Every new sighting, whether it’s close to home or miles away, is another beautiful reminder of Lea and the legacy that continues to travel with us.

Thank you, Liam and Casie, for keeping your eyes out for wings and sharing this special find!

Have you spotted wings lately? 📸 Send us a photo in a DM or email it to LeaMarieFaraoneFoundation@gmail.com with your name and where you found them.

Where will Lea’s wings show up next? 🦋💜
Today is National Nonprofit Day and we’re taking a Today is National Nonprofit Day and we’re taking a moment to celebrate the incredible community that makes the Lea Marie Faraone Foundation possible 💜

Every fundraiser attended. Every sponsorship. Every donation. Every volunteer. Every shared story. Every butterfly and wing sighting. Every act of kindness.

Together, you’ve helped us support children and young adults living with chronic illness, award scholarships to future healthcare professionals, share awareness for these devastating illnesses, and create moments of hope for families when they need it most.

What started as a way to honor Lea’s life has grown into something so much bigger than we ever imagined, and that’s because of each and every one of you.

Thank you for believing in our mission, carrying Lea’s legacy forward, and reminding us that even the smallest acts of generosity can make a lasting impact.

Here’s to continuing to lift others, inspire hope, and make a difference together.

Happy National Nonprofit Day from the LMFF team! 💜🦋

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The Lea Marie Faraone Foundation is a 501c(3) providing life changing opportunities to children and young adults fighting chronic illness so they may live as if they are illness-free.


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