Meet Brynn

Baltimore, Md. – The Lea Marie Faraone Foundation (LMFF), a nonprofit organization working to improve the lives of young individuals fighting chronic illnesses, will be surprising 10-year-old Cystic Fibrosis (CF) patient and Fox Hunter, Brynn Miller with an AffloVest on Saturday, January 23. An AffloVest, a product developed by the Austin, Texas-based, International Biophysics Corporation, is the first battery-operated High Frequency Chest Wall Oscillation (HFCWO) therapy that let patients with CF, bronchiectasis, and neuromuscular diseases receive state-of-the-art airway clearance therapy on the go.

LMFF’s donation for Brynn is part of the organization’s “Fly Me to the Moon” grant program that provides special equipment and resources needed for those with chronic illnesses so they can maintain their healthcare to its highest standards and improve their quality of life.

The surprise donation will be taking place at Furnace Ford Farm where Brynn rides horses and practices Fox Hunting. She has been participating in the sport since she was 5-years-old and is well-known within the local equestrian community.

Representatives from LMFF, AffloVest, and the Johns Hopkins Pediatric Cystic Fibrosis Center, where Brynn receives treatment, will be onsite to present the therapy vest. LMFF partnered with AffloVest to provide the vest and worked with Johns Hopkins Children’s Center to select the recipient.

The AffloVest will give Brynn more freedom and mobility to streamline her therapy, enhance airway clearance, help mobilize lung secretions, and promote treatment adherence. All AffloVests are designed to deliver seamless mobility, without the restriction of bulky hoses and generators found in other therapies to help improve the quality of life for patients with neuromuscular and respiratory diseases.

“Donations like this are what the Lea Marie Faronoe Foundation is all about,” said Laura O’Donnell-Faraone, Director and Co-Founder of LMFF. “The AffloVest will improve Brynn’s quality of life by allowing her to receive treatments on the go and not take away from time she can devote to things she is passionate about, like Fox Hunting.

This was Lea’s vision, and now our mission, to support these young fighters battling chronic illnesses.” The Lea Marie Faraone Foundation was founded in December 2018 by the Faraone (pronounced, Fah-Rone) family after the passing of their 28-year-old daughter Lea Marie Faraone due to complications from CF.

Lea worked as an infusion nurse at Good Samaritan Hospital in Baltimore, Maryland and also fell in love with advocacy work, particularly for those battling chronic illnesses. She worked and volunteered with the Maryland Chapter of the Cystic Fibrosis Foundation, where she served as a national ambassador for the Cystic Fibrosis Foundation Great Strides Campaign.

Lea felt strongly that since all individuals fighting chronic illness might not see a cure in their lifetime, that there should be work done to help their quality of life now. LMFF strives to carry out this mission while keeping the memory of Lea alive in its work. More information about the Fly Me to the Moon grant program is available at LeaMarieFaraoneFoundation.org.  

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