The Lea Marie Faraone Foundation (LMFF), a Maryland-based nonprofit organization working to improve the lives of young individuals fighting chronic illnesses, awarded 7-old-year, Cystic Fibrosis (CF) patient and Louisiana resident, Raelynn C. with a Afflovest by Tactile Medical on July 27, 2022.
Raelynn was diagnosed with CF when she was only a few weeks old. LMFF’s donation to Raelynn is part of the organization’s “Fly Me to the Moon” grant program that provides medical equipment and resources needed for those with chronic illnesses so they can maintain their healthcare to its highest standards and improve their quality of life.
An AffloVest by Tactile Medical is the first battery-operated High Frequency Chest Wall Oscillation (HFCWO) therapy that let patients with CF, bronchiectasis, and neuromuscular diseases receive state-of-the-art airway clearance therapy on the go. All AffloVests are designed to deliver seamless mobility, without the restriction of bulky hoses and generators found in other therapies to enhance the well-being for patients with neuromuscular and respiratory diseases. The vest will make daily treatments easier for Conlee and allow him to receive his therapy outside the home giving him more freedom.
Randall Roberts ,a representatives from Afflovest by Tactile Medical was present for the award. “We are thrilled to be able to provide Raelynn with a Afflovest to ease her CF treatments and improve her quality of life,” said Laura O’Donnell-Faraone, Executive Director and Co-Founder of LMFF.
The Lea Marie Faraone Foundation was founded in December 2018 by the Faraone (pronounced, Fah-Rone) family after the passing of their 28-year- old daughter Lea Marie Faraone due to complications from CF. Lea worked as an infusion nurse at Good Samaritan Hospital in Baltimore, Maryland and also fell in love with advocacy work, particularly for those battling chronic illnesses.
She worked and volunteered with the Maryland Chapter of the Cystic Fibrosis Foundation, where she served as a national ambassador for the Cystic Fibrosis Foundation Great Strides Campaign. Lea felt strongly that since all individuals fighting chronic illness might not see a cure in their lifetime, that there should be work done to help their quality of life now. LMFF strives to carry out this mission while keeping the memory of Lea alive in its work. More information about the Fly Me to the Moon grant program is available at LeaMarieFaraoneFoundation.org.